Diet, interesting facts from around the world, and practical advice for families with phenylketonuria.
How the Recipes tab in the PKU Zdrowie app works – automatic Phe calculation, portion scaling with one tap, a guided cooking mode with timers and sharing recipes with the community.
Recipes in the PKU Zdrowie app — with cooking mode Read more »
Phenylketonuria sounds like something out of a medical textbook — until you hear that diagnosis about your own child. We heard it over the phone, along with instructions to come to the ward, and one…
What is phenylketonuria (PKU)? Causes, symptoms and treatment Read more »
The promise of gene therapy sounds simple: one injection instead of a lifelong diet. Instead of weighing every gram of protein each day, the body starts breaking down phenylalanine on its own, because it receives…
Gene therapy for PKU — how far along are we really? Read more »
Danielle Freeman, author and mother of a girl with PKU diagnosed at 5 months of age, wrote a children’s book about a raccoon named Rosey who — just like her daughter — has PKU. Freeman…
Rosey Raccoon Has PKU — a book that helps children come to terms with the diet Read more »
A PKU diagnosis usually lands on parents in the first days of a child’s life, along with a list of restrictions they have to get their heads around right away. Meat, fish, eggs, dairy, bread,…
What can a child with PKU eat? A complete guide Read more »
Counting phenylalanine by hand at every meal, with a calculator and a nutrition table next to your plate — that’s what the PKU diet looks like without the right tools. The PKU Zdrowie app was…
PKU Zdrowie App — Phenylalanine calculator for Android Read more »
A study published in October 2025 by a team from Birmingham Children’s Hospital found autism and/or ADHD in 4 of 33 teenagers with PKU (12%). All of them had been treated since the first weeks…
PKU, autism and quality of life — what does the research show? Read more »
